Join our team
Do you want to make a difference? Thanks to the tireless efforts of our dedicated staff, more pulmonary fibrosis research is being funded and more people are aware of the disease. The Pulmonary Fibrosis Foundation strives to create an atmosphere that draws talented, motivated, passionate, and results-driven individuals who are able to adapt to a rapidly changing and fast-paced environment.
Inclusion, equity, and diversity are fundamental to fulfilling our vision of building a better workplace and better world. From our hiring practices to the employee journey, we embrace and celebrate the unique experiences, perspectives, and cultural backgrounds that each individual brings to the workplace. We encourage diverse points of view which allows us to develop innovative solutions.
The PFF strives to foster an environment where our employees feel respected, valued, and empowered, and our team members are at the forefront of helping us promote and sustain an inclusive workforce that works for all.
For questions or to submit your resume, please contact Mary Kiener, Senior Director, Human Resources and Administration at hr@pulmonaryfibrosis.org.
The ideal candidate is a mission-driven, strategic communicator with a strong nonprofit background, proven experience leading teams, and the ability to translate organizational priorities into compelling, multi-channel communications.
Position Details
Reports To: Chief Development Officer
Direct Reports: Manager of Marketing and Communications
Classification: Full-Time, Exempt
Responsibilities
Strategic Leadership & Planning
- Develop and implement an annual integrated marketing and communications plan aligned with the PFF’s strategic priorities, fundraising initiatives, and patient education goals, including but not limited to:
- PFF Registry
- PFF Summit
- Broadway Belts for PFF!
- PFF Walk
- Serve as the primary strategic advisor to senior leadership on all matters related to brand, communications, and marketing
- Monitor and report on key performance metrics, campaign outcomes, and departmental goals to the Chief Development Officer
- Stay current on trends in nonprofit marketing, digital communications, and the pulmonary fibrosis landscape to inform strategy
Department Management & Team Leadership
- Provide day-to-day leadership, mentorship, and professional development for the Manager of Marketing and Communications and other department staff
- Establish departmental priorities, workflows, and timelines to ensure high-quality, on-time delivery of all communications projects
- Manage departmental budget, vendor contracts, and outsourced agency relationships, ensuring effective use of resources
- Collaborate cross-functionally with Development, Programs, Research, Clinical Affairs, Corporate Partnerships, and Events teams to align messaging and support organizational goals
Brand Identity & Creative Direction
- Champion and protect the PFF brand, ensuring consistent application of visual identity guidelines across all platforms and materials
- Provide strategic and creative oversight for all public-facing PFF materials, including print, digital, social media, website, and event collateral
- Lead the evolution and refinement of brand standards as the organization grows
Digital Communications, Website & Email
- Provide strategic oversight of the PFF website and SEO strategy in partnership with outsourced digital partners
- In conjunction with the Marketing and Communications Coordinator, ensures email communications and campaigns are in alignment with organizational messaging strategies
- Evaluates performance data to optimize engagement across PFF’s digital assets
Social Media & Marketing Campaigns
- Provide strategic support to the Marketing and Communications Manager, who oversees the PFF’s social media presence across Facebook, Instagram, LinkedIn, and emerging platforms
- Oversee the development and execution of major marketing campaigns
- Supports the Marketing Manager in directing the PFF’s work with outsourced marketing agencies, ensuring deliverables meet quality standards and strategic objectives
Public Relations & Media
- Oversees PFF Communications Consultant as it relates to the PFF’s public relations strategy, including media outreach, press releases, and spokesperson preparation in partnership with PR consultants
- Serve as a communications resource and liaison for crisis communications, organizational announcements, and media inquiries
- Build and maintain relationships with media contacts and key external stakeholders
Publications & Print Communications
- Provide strategic oversight and editorial direction for the PFF’s annual magazine, the Breathe Bulletin, as well as the PFF Annual Report, and the PFF Registry Annual Report.
- Ensure all print and digital materials maintain brand integrity, accuracy, and alignment with PFF messaging
Administrative & Reporting
- When necessary, prepares and delivers reports to the Chief Development Officer on departmental activities and outcomes
- Take on special projects and assignments as requested by senior leadership
Qualifications
Required
- Bachelor’s degree in communications, marketing, public relations, or a related field; advanced degree a plus
- Minimum 7–10 years of progressive marketing and communications experience, with at least 3 years in a leadership or management role
- Demonstrated experience in nonprofit communications, with a deep understanding of mission-driven organizations
- Proven ability to develop and execute integrated, multi-channel marketing and communications strategies
- Strong leadership, team management, and mentorship skills
- Exceptional written and verbal communication skills, including experience with executive-level communications
- Experience managing budgets, agency relationships, and vendor contracts
- Proficiency in Adobe Creative Suite (Acrobat Pro, Illustrator, InDesign, Photoshop) and Microsoft Office
- Experience with digital marketing platforms, content management systems, and email marketing tools
- Ability to manage multiple priorities in a fast-paced, deadline-driven environment
- Willingness to work occasional evenings and/or weekends (less than 10%) to support PFF events and meet organizational deadlines
Preferred
- Experience in health-related nonprofit organizations, rare disease, or patient advocacy
- Familiarity with Constant Contact or similar email marketing platforms
- Experience with Sitefinity or similar web content management platforms
- Knowledge of SEO best practices and digital analytics tools (e.g., Google Analytics)
- Experience with print production processes
